TD‐P‐009: A Review of the use of Computerized Assistance Programs in Medication Compliance

Background:Improving dementia diagnosis, patient monitoring and care quality are key priorities. The benefit of diagnosis without follow-up and tailored support can be limited. Responding to the need for improved access to post-diagnostic planning, support and monitoring, we report a co-design approach to creating an on-line digital self-management platform, MyBrainBook, for patients and carers. Methods: The co-design has been carried out in 4 stages: Exploration: Six workshops with key stakeholders to understand unmet needs and prior experiences with care planning. Validation: 20 facilitated sessions were held with 38 participants to validate the utility of the digital prototype and obtain feedback on content relevance, ease of use and features. Development:Workshops with 18 participants to rank the key activities of daily living that would benefit from a support through a digital care planning tool, and one-to-one sessions to elicit feedback and suggestions for improvements. Usability: Dementia facilitators guided 15 participants to use the tool through 90 weekly structured sessions over six months. Results:Exploration: Over 60% of participants reported no support in planning for dealing with changing circumstances post-diagnosis. Validation: Participants were overwhelmingly positive with strong interest and engagement. Of those participants that had access to a tablet computer, 80% reported using it daily and only 8% of carers and 18% of dementia sufferers reported not being confident using a tablet computer. Facilitators were important to help guide those not comfortable with computers. Development: Key areas of daily living where participants reported the greatest need for support include future planning (75%), exercise (63%), shopping (63%) and sleep (75%). Usability: Feedback on ease of use enabled product features to be iterated and retested. There was a wide range of abilities to use tools independently, or need for additional support. Conclusions: Using a co-design approach we have developed a digital support and planning tool that is dementia-friendly and easy to use for those without prior computer skills. The ability to collect and monitor real-world patient and carer data and the impact on clinical decision making, cost and outcomes will be tested as part of the NHS England Test Beds initiative. [1] www.mybrainbook.com.