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TD‐P‐006: A Mobile Dementia Observation System (DOBS): Development and Pilot Usability Testing
Author(s) -
Marshall Cecelia,
Cuperfain Ari,
Tsokas Mario,
Iaboni Andrea
Publication year - 2016
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2016.06.252
Subject(s) - dementia , usability , wearable computer , mobile apps , psychological intervention , documentation , computer science , psychology , applied psychology , human–computer interaction , medicine , psychiatry , world wide web , disease , pathology , programming language , embedded system
currently operationalized across research studies, and to identify barriers and enablers to its implementation. Methods: This was a narrative review of the literature. Articles were identified through a search of electronic academic data bases (Medline, Web of Science, Scopus, EBSCO, ProQuest) and grey literature (OpenGrey, Google). Articles were included for review if they met one the following criteria: 1) described the characteristics or elements of transdisciplinary research approach; 2) reported on factors that influence transdisciplinary research process and outcomes. Results: Transdisciplinarity is not well established in dementia; the majority of literature on this approach has come from the field of sustainability science and translational medicine. Transdisciplinarity is typically used to characterize large-scale inter-disciplinary and intersectoral collaborations between scientists, academics and experiential stakeholders (e.g. industry, policy-makers, end-users) for the purpose of solving complex and “socially-relevant” problems. Key principles of this approach include: embracing complexity and multiplicity of perspectives on the scope of the problem; seeking to integrate knowledge across diverse stakeholders; and the adoption of integrated, recursive and participatory research methods. Engaging in this type of research presents a challenge as it requires culture change regarding the current way we think about and conduct research. Barriers identified include: communication, established research hierarchies and practices, dealing with uncertainty, and lengthy research process. Facilitators identified include: institutional support, heterogeneous team make-up, multi-directional communication, and collaborative leadership. Conclusions:Transdisciplinary research has received limited attention in dementia and technology research to date, highlighting the urgent need for more research in this area. Our findings can importantly support the development of ethical and participatory principles to guide future research efforts.