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P1‐421: Sensory Screening in Dementia and Alzheimer's Disease: A Scoping Review
Author(s) -
McGilton Katherine S.,
Hobler Fiona,
Guthrie Dawn,
Campos Jennifer,
Jarry Jonathan,
Dupuis Kate,
Labreche Tammy,
Wittich Walter
Publication year - 2016
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2016.06.1174
Subject(s) - dementia , psycinfo , cinahl , observational study , medline , medicine , disease , gerontology , psychology , psychological intervention , psychiatry , pathology , political science , law
views. Per protocol, open-ended questions explored symptoms, medical and caregiving information, expectations and preferences for information sources. Interview notes were reviewed to detect common themes. Results: 27 CG (19F/8M; mean 59 years; 8 spouses, 17 adult children, 2 relatives, 2 friends) cared for 29 care-recipients. Emergent themes: 1)Behavioral symptoms often troubling but not recognized as CI symptoms , or CG lacked vocabulary to describe; 2)CG did not distinguish medical from caregiving information, though initially wanted medical information; 3)Symptoms accumulated gradually; rare that a threshold moment led to information-seeking; 4)The primary care provider (PCP) was the first information source; CG requested information rather than the PCP offering, and even when asked the PCP provided little; 5)Barriers: denial or stigma of dementia, unaware of available caregiving information, CG overwhelmed, PCP busy, Internet frustration; 6)CG trust and value the PCP, and expect PCP to provide information or recommend other sources; 7)CG are open to many sources, but desire PCP to specifically endorse. Conclusions:Public education could reduce stigma, and enable CG to recognize and describe early symptoms. Case-finding by screening for cognitive and behavioral symptoms could identify CI earlier, so information is received sooner. The PCP is the crucial port of entry to health information, providing it directly or guiding the CG to recommended sources; therefore, our aim is to develop mechanisms that facilitate busy PCP’s ability to address information needs.