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O3‐02‐04: Use of informant‐reported web‐based data collection to assess dementia symptoms: Validation in relation to the dependence scale
Author(s) -
Rockwood Kenneth,
Zeng An,
Lin Laura Dong,
Mitnitski Arnold,
Leibman Christopher,
Mucha Lisa
Publication year - 2011
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2011.05.2396
Subject(s) - dementia , activities of daily living , scale (ratio) , medicine , disease , gerontology , psychology , clinical psychology , physical therapy , physics , quantum mechanics
Of 250 profilees, most care partners were women (203; 81%), 208 (83%) were less than 65 years old, usually with adult children (125; 50%) or spouses (71; 28%). Most caregivers lived in the same household (115; 46%) or saw the person with dementia at least 5 days a week (46; 18%) although 18 (7%) saw the person less than weekly. Most site users came from the United States (113; 45%) Canada (82; 33%) or the United Kingdom (22; 9%). The mean age of the patients was 77.1 years (SD = 11.1) and 133 (53%) were women. Most (198; 79%) were community dwelling, with the remaining (52; 21%) in assisted living or nursing home care. DS scores ranged from 0 to 14, with a mode of 8. With respect to patient residence (community versus institution) none of the 33 people profiled at the lowest levels of dependence (DS 12) 13 (52%) were resident in a long term care facility (χ²=27.9, P 10.