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P2‐079: Gender differences in the experience of dementia family caregivers
Author(s) -
Merrilees Jennifer,
Wong Cindy C.,
Ketelle Robin,
Wallhagen Margaret,
Miller Bruce L.
Publication year - 2010
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2010.05.1125
Subject(s) - dementia , frontotemporal dementia , family caregivers , caregiver burden , psychology , family member , depression (economics) , caregiver stress , coping (psychology) , spouse , beck depression inventory , clinical psychology , disease , gerontology , medicine , psychiatry , family medicine , anxiety , sociology , anthropology , economics , macroeconomics
assessing reactions and coping with expected death. Additional observations were made by a nurse concerning e.g., insight, preparation, physical and mental status and need of support. Results: Almost all rated respondents rated themselves as very close/close to the persons with dementia. Many felt like crying and found it unfair that the relative had dementia, thought nobody could ever take his/her place, daydreamed of life before the illness, were occupied by thoughts of the relative, and missed the pre-demented person. More than half felt lonely and had difficulties accepting the illness, needed to talk to others regarding the illness, and had difficulties concentrating. Despite that, nine out of ten stated that they were adjusted to the situation and could move on with their lives. Half of them said they were more competent since the relative was diagnosed with dementia, and many had discovered new personal resources. Conclusions: In this sample, the anticipatory grief seemed emotionally straining for close relatives, especially to spouses. As they appear to mobilise new strength to cope with the situation, they may forget to take good care of themselves. These results suggest need for support and guidance programs also during the period before the death of a loved one.