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P1‐191: Profiles of apathy: Different features among patients with frontotemporal lobar degeneration and Alzheimer's disease
Author(s) -
Ketelle Robin,
Barton Cynthia,
Merrilees Jennifer,
Weston Andrea,
Mayo Ann,
Yaffe Kristine,
Miller Bruce
Publication year - 2009
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2009.04.197
Subject(s) - apathy , frontotemporal lobar degeneration , dementia , frontotemporal dementia , alzheimer's disease , psychology , distress , medicine , psychiatry , caregiver burden , demographics , disease , cognition , clinical psychology , demography , sociology
with Alzheimer’s disease identified through an innovative case-finding program in 5 community in Indo-Nepal Border, we obtained information on the range of care arrangements, attitudes towards care giving roles and sources of strain. Results: The majority of caregivers were young women, often daughters-in-law of women with dementia. The principal sources of caregiver strain were behavioural problems associated with the dementia syndrome, and incontinence. Strain was exacerbated by the lack of supportive response by local health services, and by lack of support and, sometimes, criticism from other family members. Family conflict was commonly encountered. The majority of caregivers experienced significant deterioration in their mental health. One caregiver unfortunately committed suicide after the death of her husband. Conclusions: There is a clear need for more education, advice and support for families affected by dementia. Community services in developing countries should consider training existing domiciliary outreach services, the community-based multi-purpose health workers, to identify and support family caregivers, which is urgent need in developing country.