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P3‐227: Perception of stigma and willingness to participate in a cohort study among proxy respondents and controls in Shanghai, China: Scobhi‐pilot
Author(s) -
Copenhaver Cathleen,
Ding Ding,
Mortimer James A.,
Zhao Qianhua,
Guo Qihao,
Galasko Douglas,
Salmon David,
Petersen Ronald,
Wu Yougui,
Dai Qi,
Hong Zhen,
Borenstein Amy R.
Publication year - 2009
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2009.04.1000
Subject(s) - embarrassment , dementia , cohort , medicine , stigma (botany) , respondent , proxy (statistics) , cohort study , perception , longitudinal study , clinical psychology , disease , psychology , psychiatry , family medicine , gerontology , social psychology , pathology , machine learning , neuroscience , political science , computer science , law
aim of this study was to analyze the effect of a psycho educational programme focused on the modification of the negative emotions and the dysfunctional thought’s within a Spanish Alzheimer’ disease patient’s caregiver’s. Methods: The sample of this study consisted of 51 spanish community dwelling Alzheimer’s patient’s informal caregivers: they were distributed into two treatment conditions, the experimental group (n1⁄420), and the control group (n1⁄431). All the participants were evaluated before and after the intervention through the application of different standardized measurement tools: depression (CES-D Scale, Radloff, 1977), perceived stress (Perceived Stress Scale, Cohen, Karmarck & Mermelstein, 1983), dysfunctional thoughts (Losada, Montorio, Izal & Márquez-González, 2006), negative and positive affect (Positive and Negative Affect Schedule, Watson, Clark, & Tellegen, 1988), burden (Zarit, Reever & Bach-Peterson, 1980), satisfaction with care (Lawton, Kleban, Moss, Rovine & Glicksman, 1989), and sociodemographic measures (age, sex, amount of hours they usually sleep, etc.). For the measurement of the perceived health two questions were created in order to know the subjective perception about their health status. Results: After the psycho educational programme, the participants in the experimental group showed statistically significant differences in perceived health status [t1⁄4 -2.50; p< .05], emotional balance [t1⁄4 -2.89; p< .01] and satisfaction with care [t1⁄4 4.47; p< .001], depression [t1⁄4 4.16; p< .001], reaction to behavioural problems [t1⁄4 2.77; p< .01], burden [t1⁄4 3.37; p< .01], perceived stress [t1⁄4 2.55; p< .05] and negative affect [t1⁄4 2.60; p< .05.]. Results show that participants in the experimental group have a better perceived health status, emotional balance and are more satisfied with the care giving process. On the other hand show less depressive mood, burden related with patient’s behavioural problems, perceived stress and negative affect. Conclusions: Results in this study indicate that a psychosocial intervention can be effective in the improvement of certain psychological and emotional variables of the informal caregiver.