FAIR, safe and high-quality data: The data infrastructure and accessibility of the YOUth cohort study | Zendy

Jelmer Zondergeld | Zendy; Ron H.H. Scholten | Zendy; Barbara Vreede | Zendy; Roy S. Hessels | Zendy; A.G. Pijl | Zendy; Jacobine E. BuizerVoskamp | Zendy; Menno Rasch | Zendy; Otto Lange | Zendy; Coosje Lisabet Sterre Veldkamp | Zendy

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FAIR, safe and high-quality data: The data infrastructure and accessibility of the YOUth cohort study

Author(s) -

Jelmer Zondergeld,

Ron H.H. Scholten,

Barbara Vreede,

Roy S. Hessels,

A.G. Pijl,

Jacobine E. BuizerVoskamp,

Menno Rasch,

Otto Lange,

Coosje Lisabet Sterre Veldkamp

Publication year - 2020

Publication title -

developmental cognitive neuroscience

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 2.662

H-Index - 64

eISSN - 1878-9307

pISSN - 1878-9293

DOI - 10.1016/j.dcn.2020.100834

Subject(s) - data quality , safeguarding , cohort , minimum data set , data center , quality (philosophy) , business , data science , public relations , psychology , knowledge management , computer science , marketing , medicine , political science , service (business) , philosophy , nursing , epistemology , nursing homes , operating system

Highlights• YOUth is a longitudinal cohort study in the Netherlands that aims to produce and safely store FAIR and high-quality data. • We share our experience and expertise in setting up a high-quality research data infrastructure for sensitive cohort data. • We describe our procedures and the technical aspects of our data and data infrastructure. • We highlight the importance of collaboration between organizations.

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