Open AccessAre Data Sharing and Privacy Protection Mutually Exclusive?
Author(s) -
Yann Joly,
Stephanie O. M. Dyke,
Bartha Maria Knoppers,
Tomi Pastinen
Publication year - 2016
Publication title -
cell
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 26.304
H-Index - 776
eISSN - 1097-4172
pISSN - 0092-8674
DOI - 10.1016/j.cell.2016.11.004
Subject(s) - data sharing , biobank , epigenome , biology , information privacy , internet privacy , data science , computer science , genetics , dna methylation , medicine , gene expression , alternative medicine , pathology , gene
We review emerging strategies to protect the privacy of research participants in international epigenome research: open consent, genome donation, registered access, automated procedures, and privacy-enhancing technologies.
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