Open AccessUnderstanding speech and swallowing difficulties in individuals with Huntington disease: Validation of the HDQLIFE Speech Difficulties and Swallowing Difficulties Item Banks
Author(s) -
Noelle E. Carlozzi,
Nicholas R. Boileau,
Angela Roberts,
Praveen Dayalu,
Dana L. Hanifan,
Jennifer A. Miner,
Daniel O. Claassen,
Emily Mower Provost
Publication year - 2020
Publication title -
quality of life research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.28
H-Index - 145
eISSN - 1573-2649
pISSN - 0962-9343
DOI - 10.1007/s11136-020-02608-0
Subject(s) - swallowing , dysarthria , cronbach's alpha , psychology , discriminant validity , audiology , construct validity , quality of life (healthcare) , reliability (semiconductor) , clinical psychology , psychometrics , medicine , internal consistency , power (physics) , physics , dentistry , quantum mechanics , psychotherapist
As Huntington disease (HD) progresses, speech and swallowing difficulties become more profound. These difficulties have an adverse effect on health-related quality of life (HRQOL), thus psychometrically robust measures of speech and swallowing are needed to better understand the impact of these domains across the course of the disease. Therefore, the purpose of this study is to establish the clinical utility of two new patient-reported outcome measures (PROs), HDQLIFE Speech Difficulties and HDQLIFE Swallowing Difficulties.