Open AccessResponsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)
Author(s) -
Noelle E. Carlozzi,
Nicholas R. Boileau,
Matthew W. Roché,
Rebecca E. Ready,
Joel S. Perlmutter,
Kelvin L. Chou,
Stacey K. Barton,
Michael K. McCormack,
Julie C. Stout,
David Cella,
Jennifer A. Miner,
Jane S. Paulsen
Publication year - 2020
Publication title -
quality of life research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.28
H-Index - 145
eISSN - 1573-2649
pISSN - 0962-9343
DOI - 10.1007/s11136-020-02596-1
Subject(s) - anxiety , mental health , psychology , clinical psychology , quality of life (healthcare) , depression (economics) , affect (linguistics) , reliability (semiconductor) , psychiatry , power (physics) , physics , communication , quantum mechanics , economics , psychotherapist , macroeconomics
The majority of persons with Huntington disease (HD) experience mental health symptoms. Patient-reported outcome (PRO) measures are capable of capturing unobservable behaviors and feelings relating to mental health. The current study aimed to test the reliability and responsiveness to self-reported and clinician-rated change over time of Neuro-QoL and PROMIS mental health PROs over the course of a 24-month period.