Open AccessPsychometric properties and responsiveness of Neuro-QoL Cognitive Function in persons with Huntington disease (HD)
Author(s) -
Noelle E. Carlozzi,
Nicholas R. Boileau,
Jane S. Paulsen,
Nancy R. Downing,
Rebecca E. Ready,
Joel S. Perlmutter,
David Cella,
Kelvin L. Chou,
Michael K. McCormack,
Stacey K. Barton,
Jin Shei Lai
Publication year - 2019
Publication title -
quality of life research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.28
H-Index - 145
eISSN - 1573-2649
pISSN - 0962-9343
DOI - 10.1007/s11136-019-02391-7
Subject(s) - cognition , psychology , quality of life (healthcare) , effects of sleep deprivation on cognitive performance , cognitive test , cognitive decline , clinical psychology , disease , medicine , psychiatry , dementia , psychotherapist
Individuals with Huntington disease (HD) experience progressive cognitive decline that may appear years before motor manifestations of the disease. These declines have a profound effect on health-related quality of life (HRQOL) over the disease course, and thus it is important that self-report measures of cognitive function are validated for use in longitudinal studies.