Open AccessPartnership for defining the impact of 12 selected rare CNS tumors: a report from the CBTRUS and the NCI-CONNECT
Author(s) -
Gabrielle Truitt,
Haley Gittleman,
Rebecca Leece,
Quinn T. Ostrom,
Carol Kruchko,
Terri S. Armstrong,
Mark R. Gilbert,
Jill S. BarnholtzSloan
Publication year - 2019
Publication title -
journal of neuro-oncology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.256
H-Index - 114
eISSN - 1573-7373
pISSN - 0167-594X
DOI - 10.1007/s11060-019-03215-x
Subject(s) - medicine , incidence (geometry) , epidemiology , population , cancer registry , relative survival , cancer , oncology , demography , environmental health , physics , sociology , optics
Population-based cancer statistics, including histology-specific incidence, prevalence, and survival are essential to evaluating the total burden due to disease in a population. The National Cancer Institute's (NCI) Comprehensive Oncology Network Evaluating Rare CNS Tumors (NCI-CONNECT) was developed to better understand tumor biology and patient outcomes for 12 selected brain and other central nervous system (CNS) tumor histologies that are rare in adults to improve approaches to care and treatment. The aim of this study was to determine the incidence, prevalence, and survival of these selected rare histologies.