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Perspectives of Women Considering Bilateral Prophylactic Mastectomy and their Peers towards a Telephone‐Based Peer Support Intervention
Author(s) -
StPierre D.,
Bouchard K.,
Gauthier L.,
Chiquette J.,
Dorval Michel
Publication year - 2018
Publication title -
journal of genetic counseling
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.867
H-Index - 52
eISSN - 1573-3599
pISSN - 1059-7700
DOI - 10.1007/s10897-017-0148-x
Subject(s) - prophylactic mastectomy , mastectomy , intervention (counseling) , thematic analysis , breast cancer , medicine , qualitative research , dyad , patient satisfaction , anxiety , telephone interview , physical therapy , family medicine , psychology , nursing , cancer , psychiatry , social psychology , social science , sociology
Prophylactic mastectomy is an effective strategy to reduce the risk of breast cancer for women carrying a BRCA1/2 germline mutation. This decision is complex and may raise various concerns. Women considering this surgery have reported their desire to discuss the implications of this procedure with women who have undergone prophylactic mastectomy. We conducted a qualitative study to describe the topics covered during a telephone‐based peer support intervention between women considering prophylactic mastectomy (recipients) and women who had undergone this surgery (peers), and to explore their perspectives regarding the intervention. Thirteen dyads were formed and data from participant logbooks and evaluation questionnaires were analyzed using a thematic content analysis. Three main dimensions emerged: physical, psychological, and social. The most frequent topics discussed were: surgery (92%), recovery (77%), pain and physical comfort (69%), impacts on intimacy and sexuality (54%), cancer‐related anxiety (54%), experience related to loss of breasts (46%). Peers and recipients report that sharing experiences and thoughts about prophylactic mastectomy and the sense of mutual support within the dyad contributed significantly to their satisfaction. Special attention should be paid to the similarities between personal and medical profiles in order to create harmonious matches.