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Patient Perceptions of Telephone vs. In‐Person BRCA1/BRCA2 Genetic Counseling
Author(s) -
Peshkin Beth N.,
Kelly Scott,
Nusbaum Rachel H.,
Similuk Morgan,
DeMarco Tiffani A.,
Hooker Gillian W.,
Valdimarsdottir Heiddis B.,
Forman Andrea D.,
Joines Jessica Rispoli,
Davis Claire,
McCormick Shelley R.,
McKin Wendy,
Graves Kristi D.,
Isaacs Claudine,
Garber Judy,
Wood Marie,
Jandorf Lina,
Schwartz Marc D.
Publication year - 2016
Publication title -
journal of genetic counseling
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.867
H-Index - 52
eISSN - 1573-3599
pISSN - 1059-7700
DOI - 10.1007/s10897-015-9897-6
Subject(s) - genetic counseling , medicine , telephone counseling , patient satisfaction , clinical psychology , family medicine , randomized controlled trial , nursing , genetics , biology
Telephone genetic counseling (TC) for hereditary breast/ovarian cancer risk has been associated with positive outcomes in high risk women. However, little is known about how patients perceive TC. As part of a randomized trial of TC versus usual care (UC; in‐person genetic counseling), we compared high risk women's perceptions of: (1) overall satisfaction with genetic counseling; (2) convenience; (3) attentiveness during the session; (4) counselor effectiveness in providing support; and (5) counselor ability to recognize emotional responses during the session. Among the 554 participants (TC, N = 272; UC, N = 282), delivery mode was not associated with self‐reported satisfaction. However, TC participants found counseling significantly more convenient than UC participants (OR = 4.78, 95 % CI = 3.32, 6.89) while also perceiving lower levels of support (OR = 0.56, 95 % CI = 0.40–0.80) and emotional recognition (OR = 0.53, 95 % CI = 0.37–0.76). In exploratory analyses, we found that non‐Hispanic white participants reported higher counselor support in UC than in TC (69.4 % vs. 52.8 %; OR = 3.06, 95 % CI = 1.39–6.74), while minority women perceived less support in UC vs. TC (58.3 % vs. 38.7 %; OR = 0.80, 95 % CI = 0.39–1.65). We discuss potential research and practice implications of these findings which may further improve the effectiveness and utilization of TC.