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Health Care Professionals’ Views of Sharing Information with Families Who Have a Child with a Genetic Condition
Author(s) -
Gallo Agatha M.,
Angst Denise B.,
Knafl Kathleen A.,
Twomey John G.,
Hadley Emily
Publication year - 2010
Publication title -
journal of genetic counseling
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.867
H-Index - 52
eISSN - 1573-3599
pISSN - 1059-7700
DOI - 10.1007/s10897-010-9286-0
Subject(s) - thematic analysis , health professionals , metropolitan area , information sharing , qualitative research , health care , public health , genetic counseling , medicine , nursing , psychology , medical education , family medicine , sociology , social science , pathology , biology , political science , law , economics , genetics , economic growth
The purpose of this study was to examine health care professionals’ views and strategies for individualizing information sharing in families who have a child with a genetic condition. The sample consisted of 37 health professionals from three clinical sites in the greater metropolitan area of a large Midwestern city. Qualitative content thematic analysis was used to analyze data from the health professionals’ semi‐structured interviews. Four themes captured how health care professionals work with families around information management: Sharing Information with Parents, Taking into Account Parental Preferences, Understanding of the Condition, and Helping Parents Inform Others. These findings contribute to understanding the processes that health professionals use in sharing information with parents who have children with a genetic condition, and they provide guidance for clinical practice, professional training, and future research.