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Development of E‐Info Gene ca : A Website Providing Computer‐Tailored Information and Question Prompt Prior to Breast Cancer Genetic Counseling
Author(s) -
Albada Akke,
Dulmen Sandra,
Otten Roel,
Bensing Jozien M.,
Ausems Margreet G. E. M.
Publication year - 2009
Publication title -
journal of genetic counseling
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.867
H-Index - 52
eISSN - 1573-3599
pISSN - 1059-7700
DOI - 10.1007/s10897-009-9221-4
Subject(s) - genetic counseling , breast cancer , genetic testing , cancer , medicine , meaning (existential) , intervention (counseling) , family medicine , psychology , genetics , nursing , psychotherapist , biology
This article describes the stepwise development of the website ‘E‐info gene ca ’. The website provides counselees in breast cancer genetic counseling with computer‐tailored information and a question prompt prior to their first consultation. Counselees generally do not know what to expect from genetic counseling and they tend to have a passive role, receiving large amounts of relatively standard information. Using the “intervention mapping approach,” we developed E‐info gene ca aiming to enhance counselees’ realistic expectations and participation during genetic counseling. The information on this website is tailored to counselees’ individual situation (e.g., the counselee's age and cancer history). The website covers the topics of the genetic counseling process, breast cancer risk, meaning of being a carrier of a cancer gene mutation, emotional consequences and hereditary breast cancer. Finally, a question prompt encourages counselees to prepare questions for their genetic counseling visit.