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Stigmatization, Culture and Counseling A Commentary on Growing Up and Living with NF1: a UK–Bangladeshi Case Study—by Santi Rozario
Author(s) -
Gaff Clara L.,
Clarke Angus
Publication year - 2007
Publication title -
journal of genetic counseling
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.867
H-Index - 52
eISSN - 1573-3599
pISSN - 1059-7700
DOI - 10.1007/s10897-007-9098-z
Subject(s) - genetic counseling , stigma (botany) , presentation (obstetrics) , psychology , quality of life research , public health , psychotherapist , medicine , psychiatry , genetics , nursing , radiology , biology
Rozario's presentation of the cultural manifestations of stigma experienced by a British Bangladeshi woman with Neurofibromatosis 1 (NF1) is unusual in its detail of one woman's account of others’ interactions with her and the impact on her life. It raises issues that are readily recognisable to genetic counselors and are familiar themes in the literature on the psychology of appearance. We draw on the genetics literature and on a body of expertise in research on the psychology of visible difference to consider the role of the genetic counselor in response to expressions of stigmatization or poor self‐esteem by those with a visible difference caused by a genetic condition.