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Lay understanding of genetic disease: A British study of families attending a genetic counseling service
Author(s) -
Chapple Alison,
May Carl,
Campion Peter
Publication year - 1995
Publication title -
journal of genetic counseling
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.867
H-Index - 52
eISSN - 1573-3599
pISSN - 1059-7700
DOI - 10.1007/bf01408074
Subject(s) - genetic counseling , disease , medical genetics , public health , inheritance (genetic algorithm) , genetic testing , qualitative research , medicine , family medicine , psychology , nursing , genetics , sociology , social science , pathology , gene , biology
Although lay people know that various diseases can be inherited, the idea that unhealthy life styles are the crucial cause of ill health has been promoted by health education policy in the United Kingdom. However, a new paradigm seems to be developing. The medical profession is increasingly using “genetics” to explain ill health, and people are being referred to geneticists for information and counseling. Lay conceptions of genetic disease emerged during this qualitative study of the process of genetic counseling. The results reported in this paper suggest that many lay people lack knowledge of genetics and inheritance, and that there is considerable stigma attached to genetic disease. Misconceptions and fears may not always be recognized or resolved during the process of genetic counseling. The implications of such misunderstandings and beliefs are considered in this paper.