Open AccessAsian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research
Author(s) -
Ta Park Van,
Grill Joshua D.,
Zhu Jeanette,
Nguyen Khue,
Nam Bora,
Tsoh Janice,
Kanaya Alka,
Vuong Quyen,
Bang Joon,
Nguyen Nhi Cristina Y.,
Cho In Hyang,
GallagherThompson Dolores,
Hinton Ladson,
Meyer Oanh L.
Publication year - 2021
Publication title -
alzheimer's and dementia: translational research and clinical interventions
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.49
H-Index - 30
ISSN - 2352-8737
DOI - 10.1002/trc2.12195
Subject(s) - pacific islanders , vietnamese , outreach , gerontology , samoan , ethnic group , thematic analysis , focus group , dementia , medicine , disease , psychology , qualitative research , sociology , political science , social science , linguistics , philosophy , pathology , anthropology , law
This study elicited Asian Americans and Pacific Islanders’ (AAPI) perspectives about recruitment strategies/messaging for participation in an aging, Alzheimer's disease and related dementias (ADRD), and caregiving research recruitment registry. Methods Using a mixed methods design, CARE (Collaborative Approach for AAPI Research and Education) conducted 14 focus groups (N = 123) with AAPI cultural groups (Asian Indian, Chinese, Filipino, Japanese, Korean, Samoan, Vietnamese) in different languages. Descriptive statistics and thematic qualitative analyses were conducted. Results Mean age of participants was 54 years (median: 61; range 18–80), 66% were female, and 81% were foreign‐born. Themes of consideration for recruitment emerged: (1) culturally/linguistically appropriate outreach in culturally specific spaces, (2) motivations for research participation, and (3) approaches to outreach and recruitment methods. Within each of these themes, there were ethnic differences in specific strategies/approaches reflected as subthemes. Discussion Recruitment and messaging strategies should be tailored uniquely for each targeted AAPI group, with a thorough understanding of the cultural/linguistic factors that facilitate research participation to increase AAPI participation in ADRD, aging, and caregiver‐related research.