Open AccessBuilding a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network
Author(s) -
Handler Stephanie S.,
Varghese Nidhy P.,
Rosenzweig Erika B.,
Yung Delphine,
Krishnan Usha,
Whalen Elise,
Bates Angela,
Avitabile Catherine M.,
Jackson Emma O.,
Hirsch Russel,
Fineman Jeffrey,
Abman Steven H.
Publication year - 2022
Publication title -
pulmonary circulation
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.791
H-Index - 40
ISSN - 2045-8940
DOI - 10.1002/pul2.12031
Subject(s) - medicine , pulmonary hypertension , intensive care medicine , statement (logic) , consensus conference , cardiology , political science , law
Pediatric pulmonary hypertension (PH) is a severe, life‐threatening disease associated with diverse cardiac, pulmonary, and systemic disorders, which generally requires expertise from multiple disciplines for management. Unfortunately, expert centers are limited, often due to inadequate resources or unfamiliarity with needed components for success. The Pediatric Pulmonary Hypertension Network (PPHNet) includes expert centers in North America specifically dedicated to advancing the field of pediatric PH through research and excellent clinical care. PPHNet member sites were queried for valuable program components and these findings were discussed for consensus. Here we provide a collective overview of key elements of an optimal pediatric PH program: team composition, access to services, and commitment to education. It is our intention that this document will assist newer and/or smaller programs identify avenues and resources for growth and provide avenues for collaboration.