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Development and Reliability of the Functional Evaluation Scale for Duchenne Muscular Dystrophy, Gait Domain: A Pilot Study
Author(s) -
Carvalho Eduardo Vital,
Hukuda Michele Emy,
Escorcio Renata,
Voos Mariana Callil,
Caromano Fátima Aparecida
Publication year - 2015
Publication title -
physiotherapy research international
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.509
H-Index - 49
eISSN - 1471-2865
pISSN - 1358-2267
DOI - 10.1002/pri.1605
Subject(s) - duchenne muscular dystrophy , gait , physical medicine and rehabilitation , functional movement , reliability (semiconductor) , weakness , physical therapy , psychology , gait analysis , timed up and go test , medicine , balance (ability) , power (physics) , physics , quantum mechanics , anatomy
Background and Purpose The progression of Duchenne muscular dystrophy (DMD) results in the emergence of multiple and varied synergies to compensate muscle weakness and to deal with the demands of the functional tasks (e.g. gait). No functional evaluation instrument for individuals with DMD allows the detailed description (subjective qualitative evaluation) and compensatory movement scoring (objective quantitative evaluation) exclusively of gait. For this reason, clinicians and therapists face difficulties in assessment and decision‐making of this functional activity. This study aimed to elaborate the gait domain of the Functional Evaluation Scale for DMD (FES‐DMD‐GD) and test its intra‐rater and inter‐rater reliabilities and its relationship with age and timed motor performance. Method We listed all the compensatory movements observed in 102 10‐m gait videos of 51 children with DMD. Based on this report, the FES‐DMD‐GD was created and submitted to the review of 10 experts. After incorporating the experts suggestions, three examiners scored the videos using the FES‐DMD‐GD. The intra‐rater and inter‐rater reliabilities was calculated. Spearman correlation tests investigated the relationships between FES‐DMD‐GD and age and timed motor performance ( p < 0.05). Results The FES‐DMD‐GD was composed of three phases and had 14 items to quantify compensatory movements on gait. Intra‐class correlation coefficients ranged from acceptable (0.74) to excellent (0.99). FES‐DMD‐GD correlated to age and timed motor performance. Conclusion This pilot version of FES‐DMD‐GD showed reliability and correlated to age and timed motor performance. Copyright © 2014 John Wiley & Sons, Ltd.