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Human values and personal health records
Author(s) -
Fleischmann Kenneth R.,
Zhang Yan,
Xie Bo
Publication year - 2015
Publication title -
proceedings of the association for information science and technology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.193
H-Index - 14
ISSN - 2373-9231
DOI - 10.1002/pra2.2015.1450520100129
Subject(s) - confidentiality , transparency (behavior) , internet privacy , thematic analysis , salient , personally identifiable information , agency (philosophy) , psychology , business , political science , sociology , computer science , qualitative research , computer security , law , social science
Personal health records (PHRs) are on the rise in recent years. To understand why and how people use (or not use) PHRs, it is critical to understand what they value. This paper reports preliminary findings from a thematic analysis of journal articles related to PHRs. Our analysis identified six values with ethical import as being particularly salient to the use of personally identifiable information in this literature: privacy, confidentiality, security, transparency, trust, and human agency.