Premium
Overview of the ChILD Research Network: A roadmap for progress and success in defining rare diseases
Author(s) -
Casey Alicia M.,
Deterding Robin R.,
Young Lisa R.,
Fishman Martha P.,
Fiorino Elizabeth K.,
Liptzin Deborah R.
Publication year - 2020
Publication title -
pediatric pulmonology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.866
H-Index - 106
eISSN - 1099-0496
pISSN - 8755-6863
DOI - 10.1002/ppul.24808
Subject(s) - medicine , interstitial lung disease , intensive care medicine , natural history , disease , lung , lung disease , pediatrics , pathology
Children's interstitial and diffuse lung diseases are a diverse group of rare lung disorders that present in childhood with diffuse pulmonary infiltrates and respiratory signs and symptoms. Children with these disorders face high morbidity and mortality and their families must cope with overwhelming uncertainty. Physicians caring for these patients are challenged by a paucity of directed therapies, or even understanding of natural history. Through the establishment of the Children's Interstitial Lung Disease Foundation Research Network and the Children's Interstitial Lung Disease Foundation significant progress has been made through collaboration and research. This review outlines the past and current successes in the new and rapidly growing field of Children's Interstitial and Diffuse Lung Disease.