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Development and usability testing of the e‐EXCELS tool to guide cancer survivorship follow‐up care
Author(s) -
O'Malley Denalee M.,
Davis Stacy N.,
Devine Katie A.,
Sullivan Brittany,
Bator Alicja,
Clemow Lynn,
Ferrante Jeanne M.,
Findley Patricia A.,
Miller Suzanne M.,
Hudson Shawna V.
Publication year - 2020
Publication title -
psycho‐oncology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.41
H-Index - 137
eISSN - 1099-1611
pISSN - 1057-9249
DOI - 10.1002/pon.5222
Subject(s) - usability , ehealth , survivorship curve , medicine , health care , nursing , psychology , computer science , cancer , human–computer interaction , economics , economic growth
Objective The aim of this study is to describe a user‐centered (e.g., cancer survivors and clinicians) development process of an eHealth tool designed to facilitate self‐management of cancer survivorship follow‐up care. Methods Guided by Cognitive‐Social Health Information Processing (C‐SHIP) model and informed by core self‐management skills, we engaged in a user‐centered design process. In phase I, we conducted in‐depth interviews with survivors of breast (n = 33), prostate (n = 4), and colorectal (n = 6) cancers, and (n = 9) primary care providers to develop content and design of the web tool. Phase II utilized iterative user testing interviews (n = 9) to test the web‐based tool prototype. Data from both phases were independently coded using a template/content analytic approach. Results The top 5 functions identified in phase I for the web‐based platform included: (a) educational materials to learn and prepare for health encounters (80%); (b) questions for health providers (74%); (c) ability to track contact information of providers (67%); (d) provide general information (64%); and, (e) support information (62%). Users of the prototype reported patient burden, tool fatigue, introduction timing of the tool, relevance, and security/privacy as concerns in phase II. Conclusions This study demonstrates the value of using a theoretically informed and user‐centered design process to develop relevant and patient‐centered eHealth resources to support cancer survivorship. A larger study is needed to establish the efficacy of this eHealth tool as an intervention to improve adherence to follow‐up care guidelines.