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Premium Patient experiences with communication about sex during and after treatment for cancer
Flynn Kathryn E.,
Reese Jennifer Barsky,
Jeffery Diana D.,
Abernethy Amy P.,
Lin Li,
Shelby Rebecca A.,
Porter Laura S.,
Dombeck Carrie B.,
Weinfurt Kevin P.
Publication year2012
Publication title
Resource typeJournals
PublisherJohn Wiley & Sons
Abstract Objective We studied patients' experiences with oncology providers regarding communication about sexual issues during and after treatment for cancer. Methods During development of the Patient‐Reported Outcomes Measurement Information System (PROMIS ® ) Sexual Function measure, we collected focus group and survey data on communication with oncology professionals about sexual problems. We conducted 16 focus groups with patients and survivors ( n = 109) and analyzed the discussions for major themes, including experiences discussing sex during oncology visits. During testing of the PROMIS Sexual Function measure, we assessed experiences discussing sexual problems with oncology professionals ( n = 819) and measured bivariate associations between asking for information from clinicians and sexual function and satisfaction with sex life. Results Most patients and survivors (74%) thought that discussions with oncology professionals about sexual problems were important, but whether they had ever received information about sexual function from a provider varied by cancer type (23% lung, 29% breast, 39% colorectal, and 79% prostate). Those who had asked an oncology professional about sexual problems had significantly greater interest in sexual activity as well as more sexual dysfunction. Conclusions Sexual problems are a widespread concern among patients and survivors, but there is much variation in experiences of communication about sexual issues, and many patients do not receive the information they need from their oncology providers. There are large differences in sexual function between patients who do and do not ask providers about sexual problems. Sexual health has yet to be fully integrated into oncology care, even for cancers involving sex organs. Copyright © 2011 John Wiley & Sons, Ltd.
Subject(s)business , cancer , clinical psychology , family medicine , focus group , gender studies , human sexuality , marketing , medicine , oncology , prostate cancer , sexual dysfunction , sexual function , sociology
SCImago Journal Rank1.41

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