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Can health beliefs help in explaining attendance to follow‐up care? The Swiss Childhood Cancer Survivor Study
Author(s) -
Michel Gisela,
Kuehni Claudia E.,
Rebholz Cornelia E.,
Zimmermann Karin,
Eiser Christine,
Rueegg Corina S.,
von der Weid Nicolas X.
Publication year - 2011
Publication title -
psycho‐oncology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.41
H-Index - 137
eISSN - 1099-1611
pISSN - 1057-9249
DOI - 10.1002/pon.1823
Subject(s) - childhood cancer , attendance , psychology , cancer , medicine , health care , gerontology , family medicine , political science , law
Objective : Improved treatment has increased the survival of childhood cancer patients in recent decades, but follow‐up care is recommended to detect and treat late effects. We investigated relationships between health beliefs and follow‐up attendance in adult childhood cancer survivors. Methods : Childhood cancer survivors aged younger than 16 years when diagnosed between 1976 and 2003, who had survived for more than 5 years and were currently aged 20+ years, received a postal questionnaire. We asked survivors whether they attended follow‐up in the past year. Concepts from the Health Belief Model (perceived susceptibility and severity of future late effects, potential benefits and barriers to follow‐up, general health value and cues to action) were assessed. Medical information was extracted from the Swiss Childhood Cancer Registry. Results : Of 1075 survivors (response rate 72.3%), 250 (23.3%) still attended regular follow‐up care. In unadjusted analyses, all health belief concepts were significantly associated with follow‐up ( p <0.05). Adjusting for other health beliefs, demographic, and medical variables, only barriers (OR=0.59; 95%CI: 0.43–0.82) remained significant. Younger survivors, those with lower educational background, diagnosed at an older age, treated with chemotherapy, radiotherapy, or bone marrow transplantation and with a relapse were more likely to attend follow‐up care. Conclusions : Our study showed that more survivors at high risk of cancer‐ and treatment‐related late effects attend follow‐up care in Switzerland. Patient‐perceived barriers hinder attendance even after accounting for medical variables. Information about the potential effectiveness and value of follow‐up needs to be available to increase the attendance among childhood cancer survivors. Copyright © 2010 John Wiley & Sons, Ltd.