A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling | Zendy

Wakefield Claire E. | Zendy; Meiser Bettina | Zendy; Homewood Judi | Zendy; Taylor Alan | Zendy; Gleeson Margaret | Zendy; Williams Rachel | Zendy; Tucker Kathy | Zendy

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A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling

Author(s) -

Wakefield Claire E.,

Meiser Bettina,

Homewood Judi,

Taylor Alan,

Gleeson Margaret,

Williams Rachel,

Tucker Kathy

Publication year - 2008

Publication title -

psycho‐oncology

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 1.41

H-Index - 137

eISSN - 1099-1611

pISSN - 1057-9249

DOI - 10.1002/pon.1353

Subject(s) - genetic counseling , genetic testing , medicine , randomized controlled trial , family medicine , breast cancer , decision aids , gynecology , ovarian cancer , physical therapy , psychology , cancer , alternative medicine , surgery , pathology , biology , genetics

Objectives : To evaluate the impact of a decision aid for women considering genetic testing for breast/ovarian cancer risk given during genetic counseling. Methods : One hundred and forty‐eight women were randomized to receive the decision aid or a control pamphlet at the beginning of their first consultation with a genetic counselor. When the patient received the decision aid, it was used to complement consultation discussions about genetic testing. One hundred and ten (74.3%) women completed the first questionnaire designed to elicit information about women's levels of decisional conflict and knowledge about genetic testing. Of these, 105 (70.9%) completed a second questionnaire to assess longer‐term outcomes, 6 months postconsultation. Results : Results showed that women who received the decision aid felt more informed about genetic testing ( χ 2 (1)=8.69; P =0.003), had clearer values ( χ 2 (1)=6.90; P =0.009) and had higher knowledge levels ( χ 2 (2)=6.49; P =0.039) than women who received the control pamphlet. Conclusions : The developed decision aid improved patient outcomes better than a control pamphlet when implemented during genetic counseling and given to the patient to take home. Copyright © 2008 John Wiley & Sons, Ltd.

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