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A scoping review of transition interventions for young adults with sickle cell disease
Author(s) -
Viola Adrienne,
Porter Jerlym,
Shipman Jelaina,
Brooks Ellen,
Valrie Cecelia
Publication year - 2021
Publication title -
pediatric blood and cancer
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.116
H-Index - 105
eISSN - 1545-5017
pISSN - 1545-5009
DOI - 10.1002/pbc.29135
Subject(s) - medicine , attrition , psychological intervention , disease , medline , randomized controlled trial , intensive care medicine , family medicine , gerontology , pediatrics , psychiatry , pathology , dentistry , political science , law
Standardized programming for individuals with sickle cell disease (SCD) transitioning from pediatric to adult‐centered care does not currently exist, resulting in high rates of mortality and morbidity. This scoping review examines and evaluates the current literature on SCD transition programs and interventions. Eligible studies described an existing program for individuals with SCD aged 12–29 years preparing to transition. The Evidence Project risk‐of‐bias tool was used to assess article quality. We identified 30 eligible articles, of which, only two were randomized controlled trials. Many studies have incomplete reports of feasibility information, such as completion rates, patient characteristics, and attrition; all studies were limited to a single institution; and most studies were rated high for risk of bias. Progress has been made in designing and gathering initial evaluation data for SCD transition programs; however, there is a need for higher quality studies, consistent assessment, and better dissemination of programs.