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Models of care for adolescent and young adult cancer programs
Author(s) -
Osborn Michael,
Johnson Rebecca,
Thompson Kate,
Anazodo Antoinette,
Albritton Karen,
Ferrari Andrea,
Stark Daniel
Publication year - 2019
Publication title -
pediatric blood and cancer
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.116
H-Index - 105
eISSN - 1545-5017
pISSN - 1545-5009
DOI - 10.1002/pbc.27991
Subject(s) - medicine , psychosocial , multidisciplinary approach , adult care , survivorship curve , erikson's stages of psychosocial development , family medicine , nursing , cancer , young adult , gerontology , psychiatry , psychology , social science , developmental psychology , sociology
This review draws on the experience of adolescent and young adult (AYA) cancer clinicians from Australia, the United States, and the United Kingdom to summarize common aspects of models of care implemented in their countries. The principles underpinning these models include patient‐ and family‐focused care informed by an understanding of normal AYA development, enhancing existing adult or pediatric cancer services to meet the needs of AYA, and promoting collaboration between pediatric and adult oncologists. Common elements of AYA cancer care include establishing an AYA multidisciplinary team that integrates medical and psychosocial care, efforts to centralize complex care, providing access and equity for all AYA, promoting clinical trials, and helping facilitate transition to healthy survivorship. Several organizational approaches are described, noting that local program development depends on resources, infrastructure, and assessment of unmet needs within the region. The development of national networks provides opportunities for shared learning and approaches to evaluation.