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Parents’ Perspective of Quality of Life of Retinoblastoma Survivors
Author(s) -
Batra Atul,
Kain Raman,
Kumari Mamta,
Paul Reeja,
Dhawan Deepa,
Bakhshi Sameer
Publication year - 2016
Publication title -
pediatric blood and cancer
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.116
H-Index - 105
eISSN - 1545-5017
pISSN - 1545-5009
DOI - 10.1002/pbc.25982
Subject(s) - medicine , retinoblastoma , quality of life (healthcare) , health related quality of life , proxy (statistics) , pediatrics , perspective (graphical) , disease , biochemistry , chemistry , nursing , machine learning , artificial intelligence , computer science , gene
Health‐related quality of life (HRQOL) in retinoblastoma survivors was assessed using parent proxy report of PedsQL TM 4.0 generic core scale. One hundred twenty‐two parents of retinoblastoma survivors filled the questionnaire satisfactorily. This was compared with parent‐reported HRQOL of 50 siblings. The median age of survivors was 98 (range, 60–247) months and male:female ratio was 2:1. The overall parent‐reported HRQOL was significantly worse in survivors as compared to controls (74.4 ± 8.5 vs. 85.1 ± 4.6, P < 0.001). All health domains were significantly affected when compared with controls. None of the baseline and treatment‐related factors predicted HRQOL.