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Patient‐perceived facilitators in the transition of care for young adult survivors of childhood cancer
Author(s) -
Sadak Karim Thomas,
DiNofia Amanda,
Reaman Gregory
Publication year - 2013
Publication title -
pediatric blood and cancer
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.116
H-Index - 105
eISSN - 1545-5017
pISSN - 1545-5009
DOI - 10.1002/pbc.24494
Subject(s) - survivorship curve , medicine , childhood cancer , young adult , family medicine , pediatric cancer , adult care , cancer , gerontology
Background A new challenge has emerged in optimizing the transition of pediatric survivorship care to similarly focused programs that are age‐appropriate for young adults. The purpose of this study is to identify components of a clinical survivorship program that facilitate the transition of care for young adult survivors of childhood cancer from a pediatric to adult care‐setting. Procedure Prior to transition, a descriptive study of childhood cancer survivors was conducted using a cross‐sectional study design. A questionnaire was used to identify which clinical components of a survivorship program would most influence their decision to transition care to an adult medical center. Results Of 129 invited survivors, 103 participated (80%). Most survivors were age 16–19 years (40/103, 39%) or 20–24 years (37/103, 36%). When asked if the participant was willing to transition their survivorship care to an adult facility, 97 (95%) responded affirmatively. The clinical components most frequently rated “Very Important” in the decision to transition were the acceptance of insurance (80/103, 78%) followed by the presence of a provider knowledgeable in childhood cancer (68/103, 66%). The clinical components most frequently rated “Very Important” or “Important” were the availability of flexible scheduling (102/103, 99%) followed by the comprehensive nature of the care provided (101/103, 98%). Conclusions The decision to transition survivorship care to age‐appropriate care‐settings is complex and not well understood. Issues related to insurance, clinical team composition and scheduling appear to be most important for young adult survivors making this decision. Pediatr Blood Cancer 2013;601365‐1368. © 2013 Wiley Periodicals, Inc.