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Health‐related quality of life in sickle cell disease: Past, present, and future
Author(s) -
Panepinto Julie A.,
Bonner Melanie
Publication year - 2012
Publication title -
pediatric blood and cancer
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.116
H-Index - 105
eISSN - 1545-5017
pISSN - 1545-5009
DOI - 10.1002/pbc.24176
Subject(s) - medicine , disease , quality of life (healthcare) , health related quality of life , critical appraisal , medline , gerontology , intensive care medicine , pediatrics , alternative medicine , pathology , nursing , political science , law
Health‐related quality of life (HRQL) is defined as the patient's appraisal of how his/her well being and level of functioning, compared to the perceived ideal, are affected by individual health. The study of HRQL in children and adults with sickle cell disease (SCD) has begun to flourish. Given the devastating complications of the disease and other co‐morbid factors patients experience that influence HRQL, it is increasingly important to understand HRQL. The focus of this critical review was to examine past and current research in HRQL in SCD where a validated instrument was used. In addition, future directions for HRQL in SCD are explored. Pediatr Blood Cancer 2012;59:377–385. © 2012 Wiley Periodicals, Inc.