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Health‐related quality of life in sickle cell disease
Author(s) -
Panepinto Julie A.
Publication year - 2008
Publication title -
pediatric blood and cancer
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.116
H-Index - 105
eISSN - 1545-5017
pISSN - 1545-5009
DOI - 10.1002/pbc.21557
Subject(s) - medicine , disease , quality of life (healthcare) , blood cancer , hematopoietic stem cell transplantation , intensive care medicine , hematopoietic cell , blood disorder , cancer , pediatrics , stem cell , haematopoiesis , nursing , biology , genetics
Abstract Advances in drug therapy, hematopoietic stem cell transplantation, and technology have improved the morbidity and survival for those with sickle cell disease. The effect of this modern therapy on the health‐related quality of life (HRQL) of those with sickle cell disease is not known. HRQL provides an assessment of how an illness, its complications, and its treatment are experienced by a patient. This review will examine prior work in HRQL in sickle cell disease and the rationale for utilizing HRQL as an outcome to measure impact of treatment. In addition, issues to consider when reporting HRQL will be presented. Pediatr Blood Cancer 2008;51:5–9. © 2008 Wiley‐Liss, Inc.