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“Flying by the seat of our pants”: What dementia family caregivers want in an advanced caregiver training program
Author(s) -
Samia Linda W.,
Hepburn Kenneth,
Nichols Lynne
Publication year - 2012
Publication title -
research in nursing and health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.836
H-Index - 85
eISSN - 1098-240X
pISSN - 0160-6891
DOI - 10.1002/nur.21504
Subject(s) - dementia , caregiver stress , family caregivers , psychological intervention , focus group , intervention (counseling) , psychology , gerontology , resource (disambiguation) , caregiver burden , nursing , medicine , disease , computer network , pathology , marketing , computer science , business
Although dementia caregiver stress and burden can be ameliorated with intervention, such interventions typically occur in specific caregiving contexts and at specific points in the progression of the dementing illness. We explored the ongoing learning needs and preferences of previously trained caregivers. Descriptive analysis of caregiver survey responses ( N = 168) informed follow‐up focus group interviews conducted with 26 family caregivers. Content analysis of focus group data showed that caregivers enjoyed the interactive problem‐solving of the group related to preparing for the future, shaping the troubling behavior of the care recipient, reshaping the resource team, and caring for themselves. These findings support the need for advanced training as caregivers move through the trajectory of caring for persons with dementia. © 2012 Wiley Periodicals, Inc. Res Nurs Health 35:598–609, 2012