Premium
Parental caregiving of children prior to hematopoietic stem cell transplant
Author(s) -
Rodday Angie Mae,
Pedowitz Elizabeth J.,
Mayer Deborah K.,
Ratichek Sara J.,
Given Charles W.,
Parsons Susan K.
Publication year - 2012
Publication title -
research in nursing and health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.836
H-Index - 85
eISSN - 1098-240X
pISSN - 0160-6891
DOI - 10.1002/nur.21485
Subject(s) - cronbach's alpha , medicine , clinical psychology , family caregivers , schedule , psychology , gerontology , psychometrics , computer science , operating system
Using the Caregiver Reaction Assessment (CRA), we assessed positive reactions and burdens of the caregiving experience among parental caregivers ( n = 189) of children scheduled to undergo hematopoietic stem cell transplant. Although widely used in non‐parental caregivers, the CRA has not been used in parents of pediatric patients. Reliability (Cronbach's alpha: .72–.81 vs. .63) and concurrent validity (correlation: .41–.61 vs. .28) were higher for negatively framed than positively framed subscales. Results indicate that the caregiving experience is complex. The parents experienced high caregiver's esteem and moderate family support, but also negative impacts on finances and schedule, and to a lesser degree, health. Compared to non‐parental caregivers, parental caregivers experienced higher esteem and more impact on finances and schedule. © 2012 Wiley Periodicals, Inc. Res Nurs Health 35:328–339, 2012