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Randomized controlled trial of SPIRIT: An effective approach to preparing African‐American dialysis patients and families for end of life
Author(s) -
Song MiKyung,
Ward Sandra E.,
Happ Mary Beth,
Piraino Beth,
Donovan Heidi S.,
Shields AnneMarie,
Connolly Mary C.
Publication year - 2009
Publication title -
research in nursing and health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.836
H-Index - 85
eISSN - 1098-240X
pISSN - 0160-6891
DOI - 10.1002/nur.20320
Subject(s) - randomized controlled trial , medicine , intervention (counseling) , end stage renal disease , end of life care , dialysis , advance care planning , physical therapy , gerontology , family medicine , palliative care , nursing , hemodialysis , psychiatry , surgery
This randomized controlled trial tested an intervention, Sharing Patients' Illness Representations to Increase Trust (SPIRIT), designed to enhance communication regarding end‐of‐life care between African Americans with end‐stage renal disease (ESRD) and their chosen surrogate decision makers ( N = 58 dyads). We used surveys and semi‐structured interviews to determine the feasibility, acceptability, and preliminary effects of SPIRIT on patient and surrogate outcomes at 1 week and 3 months post‐intervention. We also evaluated patients' deaths and surrogates' end‐of‐life decision making to assess surrogates' perceptions of benefits and limitations of the SPIRIT while facing end‐of‐life decisions. We found that SPIRIT promoted communication between patients and their surrogates and was effective and well received by the participants. © 2009 Wiley Periodicals, Inc. Res Nurs Health 32:260–273, 2009