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Parents' perspectives on having their children interviewed for research
Author(s) -
Hadley Emily K.,
Smith Carrol A.M.,
Gallo Agatha M.,
Angst Denise B.,
Knafl Kathleen A.
Publication year - 2008
Publication title -
research in nursing and health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.836
H-Index - 85
eISSN - 1098-240X
pISSN - 0160-6891
DOI - 10.1002/nur.20231
Subject(s) - limiting , qualitative research , psychology , developmental psychology , semi structured interview , work (physics) , medical education , medicine , sociology , social science , engineering , mechanical engineering
We describe parents' perspectives on research interviews with their children with single gene conditions. One hundred forty‐two parents were interviewed between 2002 and 2003 in a larger study using a qualitative descriptive design. Two questions from the semi‐structured interview guide were used to identify parents' perspectives about future interviews. Almost all of the parents said they would allow an interview with their children, but some parents specified stipulations. These stipulations included: focusing on age‐appropriate information, limiting information with child, considering input from parents, and providing a child‐oriented environment. Knowing this information, researchers can prepare to work more collaboratively with parents and include them more fully in the research process. © 2007 Wiley Periodicals, Inc. Res Nurs Health 31:4–11, 2008