Open AccessBarriers to home‐based palliative care in people with cancer: A qualitative study of the perspective of caregivers
Author(s) -
Hassankhani Hadi,
Rahmani Azad,
Best Amy,
Taleghani Fariba,
Sanaat Zohreh,
Dehghannezhad Javad
Publication year - 2020
Publication title -
nursing open
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.55
H-Index - 12
ISSN - 2054-1058
DOI - 10.1002/nop2.503
Subject(s) - distrust , palliative care , qualitative research , nursing , medicine , perspective (graphical) , poverty , family caregivers , descriptive research , family medicine , psychology , sociology , political science , social science , artificial intelligence , computer science , psychotherapist , law
Aim To investigate the barriers to home‐based palliative care for cancer patients from professional caregivers' experiences. Design A qualitative study. Method This is a descriptive‐qualitative study carried out in the community‐based care. Twenty‐three participants took part in this study. Data were collected through semi‐structured interviews. Results Data analysis led to the identification of three category of barriers including the lack of instructions (the lack of clinical practice guidelines, the ambiguity of tariffs and the lack of insurance coverage), family desperation (family views of prognosis, distrust and poverty) and lack of professionalism (limited knowledge, the use of amateur nurses and siloed care). Developing a care protocol and providing resources support contribute to the development of home‐based palliative care. Moreover, the education of families and training courses for nurses must be fostered.