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Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis
Author(s) -
Pattee Gary L.,
Plowman Emily K.,
Focht Garand Kendrea L.,
Costello John,
Brooks Benjamin Rix,
Berry James D.,
Smith Richard A.,
Atassi Nazem,
Chapin Jennifer L.,
Yunusova Yana,
McIlduff Courtney E.,
Young Eufrosina,
Macklin Eric A.,
Locatelli Eduardo R.,
Silani Vincenzo,
Heitzman Daragh,
Wymer James,
Goutman Stephen A.,
Gelinas Deborah F.,
Perry Bridget,
Nalipinski Paige,
Stipancic Kaila,
O'Brien Meghan,
Sullivan Stacey L.,
Pioro Erik P.,
Gargiulo Gisella,
Green Jordan R.
Publication year - 2019
Publication title -
muscle and nerve
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.025
H-Index - 145
eISSN - 1097-4598
pISSN - 0148-639X
DOI - 10.1002/mus.26408
Subject(s) - amyotrophic lateral sclerosis , medicine , clinical practice , physical medicine and rehabilitation , augmentative and alternative communication , best practice , swallowing , set (abstract data type) , frontotemporal dementia , physical therapy , disease , psychology , dementia , pathology , psychiatry , surgery , computer science , management , economics , programming language
: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics. Methods : ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results : Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain. Discussion : We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence‐based approach. Muscle Nerve 59:531–531, 2019