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Multidisciplinary amyotrophic lateral sclerosis telemedicine care: The store and forward method
Author(s) -
Pulley Michael T.,
Brittain Rebecca,
Hodges Wayne,
Frazier Christine,
Miller Leslie,
MatyjasikLiggett Maria,
Maurer Susan,
Peters Melissa,
Solomon Kimberly,
Berger Alan R.
Publication year - 2019
Publication title -
muscle and nerve
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.025
H-Index - 145
eISSN - 1097-4598
pISSN - 0148-639X
DOI - 10.1002/mus.26170
Subject(s) - amyotrophic lateral sclerosis , telemedicine , multidisciplinary approach , physical medicine and rehabilitation , medicine , neuroscience , psychology , health care , pathology , disease , political science , law
: Amyotrophic lateral sclerosis (ALS) patients benefit from multidisciplinary care in an ALS clinic. We studied whether multidisciplinary care of ALS patients using the store and forward method of telemedicine was feasible and acceptable to patients and providers. Methods : ALS patients seen in the University of Florida (UF) Jacksonville ALS clinic were eligible for our study. A trained telemedicine nurse performed and recorded a multidisciplinary assessment of the patient in their home. Clinic team members reviewed the assessments and provided recommendations, and the clinic director discussed the plan with the patient via videoconference. Patient and provider satisfaction was evaluated using surveys. Results : Eighteen patients completed a total of 27 telemedicine visits. Patient satisfaction was excellent and provider satisfaction was very good. Discussion : The store and forward method of telemedicine is an acceptable alternative to live telemedicine for the multidisciplinary care of ALS patients. This method of care may improve access to multidisciplinary care for this patient population. Muscle Nerve 59 :34–39, 2019