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Participation restrictions in ambulatory amyotrophic lateral sclerosis patients: Physical and psychological factors
Author(s) -
Groenestijn Annerieke C.,
Schröder Carin D.,
KruitwagenVan Reenen Esther T.,
Berg Leonard H.,
VisserMeily Johanna M.A.
Publication year - 2017
Publication title -
muscle and nerve
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.025
H-Index - 145
eISSN - 1097-4598
pISSN - 0148-639X
DOI - 10.1002/mus.25574
Subject(s) - amyotrophic lateral sclerosis , ambulatory , learned helplessness , medicine , feeling , physical therapy , psychology , physical medicine and rehabilitation , clinical psychology , disease , social psychology
The aim of this study was to assess the prevalence of participation restrictions in ambulatory patients with amyotrophic lateral sclerosis (ALS) and to identify physical and psychological contributory factors. Methods In this cross‐sectional study, self‐reported participation restrictions of 72 ambulatory ALS patients were assessed using the social health status dimension (SIPSOC) of the Sickness Impact Profile (SIP‐68). Associations between SIPSOC and physical functioning, psychological factors, and demographic factors were analyzed using hierarchical regression analyses. Results Ninety‐two percent of the patients reported participation restrictions; 54.9% could be explained by physical functioning; psychological factors accounted for 8.1% of the variance. Lung capacity, functional mobility, fatigue, and helplessness were independently associated with participation restrictions. Conclusions Ambulatory ALS patients have participation restrictions, which may be influenced if early ALS care is directed toward lung capacity, functional mobility, fatigue, and feelings of helplessness. Muscle Nerve 56 : 912–918, 2017