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Fatigue and daytime sleepiness scale in myotonic dystrophy type 1
Author(s) -
Hermans Mieke C.E.,
Merkies Ingemar S.J.,
Laberge Luc,
Blom Eveline W.,
Tennant Alan,
Faber Catharina G.
Publication year - 2013
Publication title -
muscle and nerve
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.025
H-Index - 145
eISSN - 1097-4598
pISSN - 0148-639X
DOI - 10.1002/mus.23478
Subject(s) - rasch model , epworth sleepiness scale , excessive daytime sleepiness , psychology , rating scale , myotonic dystrophy , construct validity , psychometrics , physical therapy , daytime , physical medicine and rehabilitation , clinical psychology , medicine , developmental psychology , psychiatry , cognition , polysomnography , sleep disorder , apnea , atmospheric sciences , geology
: Fatigue and excessive daytime sleepiness are frequent complaints in myotonic dystrophy type 1 (DM1) that often overlap. We aimed to construct a combined fatigue and daytime sleepiness rating scale for DM1 using the Rasch measurement model. Methods : Questionnaires, including the Epworth Sleepiness Scale, Fatigue Severity Scale, and Daytime Sleepiness Scale, were completed by 354 patients. Data were subjected to Rasch analyses and tested for required measurement issues such as appropriate response categories, absence of item bias, local independence, and unidimensionality. Results : The initial 22 items did not meet Rasch model expectations. After rescoring and removing misfitting items, the final 12‐item scale showed good model fit and unidimensionality. High internal consistency (person separation index = 0.80) and validity were demonstrated. Conclusions : The Rasch‐built Fatigue and Daytime Sleepiness Scale, developed specifically for DM1 patients, provides interval measures on a single continuum. Its use is suggested for future clinical trials and therapeutic follow‐up. Muscle Nerve, 2013