Premium
Amyotrophic lateral sclerosis and palliative care: Where we are, and the road ahead
Author(s) -
Blackhall Leslie J.
Publication year - 2012
Publication title -
muscle and nerve
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.025
H-Index - 145
eISSN - 1097-4598
pISSN - 0148-639X
DOI - 10.1002/mus.22305
Subject(s) - amyotrophic lateral sclerosis , palliative care , quality of life (healthcare) , medicine , multidisciplinary approach , physical therapy , intensive care medicine , physical medicine and rehabilitation , disease , nursing , social science , sociology
Patients with amyotrophic lateral sclerosis (ALS) have high symptom burdens, including pain, fatigue, dyspnea, and sialorrhea, and they must make difficult decisions about the use of life‐prolonging therapies, such as long‐term mechanical ventilation. The impact of ALS is also felt by family caregivers who often struggle to meet the heavy physical, financial, and emotional demands associated with the illness. Expert multidisciplinary care may improve both quality and length of life of patients with ALS. However, although advances have been made in the treatment of some symptoms, others, including pain management, remain poorly studied. Involvement of palliative care specialists as part of the ALS multidisciplinary team is recommended, as we continue to work toward improving the quality of life for patients and their families. Muscle Nerve, 2012