Open AccessRecruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review
Author(s) -
Waheed Waquas,
Mirza Nadine,
Waheed Muhammed Wali,
Blakemore Amy,
Kenning Cassandra,
Masood Yumna,
Matthews Fiona,
Bower Peter
Publication year - 2020
Publication title -
international journal of methods in psychiatric research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.275
H-Index - 73
eISSN - 1557-0657
pISSN - 1049-8931
DOI - 10.1002/mpr.1806
Subject(s) - ethnic group , dementia , inclusion (mineral) , qualitative research , normative , data collection , psychology , qualitative property , medical education , gerontology , medicine , sociology , political science , disease , social science , social psychology , pathology , machine learning , anthropology , computer science , law
Objective Identifying existing recruitment and methodological issues within dementia research conducted in UK studies that included ethnic minorities. Methods We searched for and included any publication detailing dementia research in the UK that included any ethnic minority. The search results and all titles and abstracts were screened according to the inclusion criteria followed by screening of the full texts. We extracted data regarding the recruitment and methodological issues faced by the researchers. This data was combined and listed, and related issues were grouped into overarching themes and subthemes. Results Of 52 publications suitable for analysis, 33 provided data collated into six themes: attitudes and beliefs about dementia in ethnic minority communities, recruitment process, data collection issues, practical issues, researcher characteristics, and lack of published research and normative data. These themes allowed us to identify three areas responsible for addressing these recruitment and methodological issues: community and patient education, health services, and researchers' training. Conclusions This is the first review identifying recruitment and methodological issues within UK dementia research that included ethnic minorities. We now have a compilation of reported existing issues and a framework of areas responsible for addressing them and devising solutions.