Open AccessCrowdsourcing health literacy: The case of an online community
Author(s) -
Rubenstein Ellen L.
Publication year - 2013
Publication title -
proceedings of the american society for information science and technology
Language(s) - English
Resource type - Journals
eISSN - 1550-8390
pISSN - 0044-7870
DOI - 10.1002/meet.14505001119
Subject(s) - comprehension , online community , health literacy , crowdsourcing , perception , health information , breast cancer , survivorship curve , medical education , information literacy , psychology , medical information , literacy , medicine , cancer , health care , computer science , family medicine , world wide web , pedagogy , political science , neuroscience , law , programming language
Drawing on data from 31 semi‐structured, in‐depth interviews, participant observation, and online archives analysis, this paper examines the health information interactions that participants in an online breast cancer community experienced as they progressed through breast cancer and survivorship. The findings reveal … This research highlights patients' perceptions of information gaps, how patients navigated through their information gaps with the help of the community, and the significance of peer interaction in the comprehension of medical information and medical decision‐making.