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Quality of life of patients with recurrent respiratory papillomatosis
Author(s) -
San Giorgi Michel R. M.,
Aaltonen LeenaMaija,
Rihkanen Heikki,
Tjon Pian Gi Robin E. A.,
Laan Bernard F. A. M.,
HoekstraWeebers Josette E. H. M.,
Dikkers Frederik G.
Publication year - 2017
Publication title -
the laryngoscope
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.181
H-Index - 148
eISSN - 1531-4995
pISSN - 0023-852X
DOI - 10.1002/lary.26413
Subject(s) - psychosocial , medicine , quality of life (healthcare) , hospital anxiety and depression scale , depression (economics) , anxiety , physical therapy , disease , population , recurrent respiratory papillomatosis , health care , psychiatry , nursing , environmental health , economics , macroeconomics , economic growth
Objectives/Hypothesis Recurrent respiratory papillomatosis (RRP) is a disease with a high disease burden. Few studies have assessed quality of life (QoL) of RRP patients. This study compares QoL of these patients with controls. Associations between QoL and sociodemographic and illness‐related factors are examined, as is uptake of psychosocial care and speech therapy. Study Design Prospective cross‐sectional questionnaire research. Methods Ninety‐one RRP patients (response = 67%) from two university hospitals in the Netherlands and Finland completed the following patient reported outcome measures: (HADS), 15‐dimensional health‐related quality‐of‐life scale (15D), Voice Handicap Index (VHI) and the RAND 36‐item health‐related quality‐of‐life survey instrument (RAND‐36) assessing health‐related QoL and voice handicap, and they provided sociodemographic, illness‐related, and allied healthcare use. Descriptive analyses, χ 2 tests, t tests, analysis of variance tests, and Pearson correlations were computed to describe the study population and to examine differences between groups. Results RRP patients had significantly higher mean scores on depression, health‐related QoL (15D) and on voice problems (VHI), and significantly lower mean scores on anxiety than controls. Dutch patients had more pain and a decreased general health perception (RAND‐36) than controls. Dutch patients and older patients were more depressed, women were more anxious, older patients had lower health‐related QoL, and smoking was significantly associated with voice handicap. Patients who had received psychosocial care had significantly higher HADS‐depression mean scores than patients who did not receive psychosocial care. Conclusions Having RRP has significant effect on voice‐related QoL and depression, but has no negative effect on anxiety and health‐related QoL. Risk factors for decreased functioning are different than previously hypothesized by many authors. Prevention should be aimed at these risk factors. Level of Evidence 4. Laryngoscope , 127:1826–1831, 2017