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Development of a breast reconstruction satisfaction questionnaire (BRECON): Dimensionality and clinical importance of breast symptoms, donor site issues, patient expectations, and relationships
Author(s) -
Temple Claire L.F.,
Cook E. Francis,
Ross Douglas C.,
BettgerHahn Margo,
MacDermid Joy
Publication year - 2010
Publication title -
journal of surgical oncology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.201
H-Index - 111
eISSN - 1096-9098
pISSN - 0022-4790
DOI - 10.1002/jso.21477
Subject(s) - medicine , patient satisfaction , intraclass correlation , breast reconstruction , focus group , family medicine , clinical psychology , psychometrics , breast cancer , surgery , business , cancer , marketing
Objectives To develop a valid, reliable and responsive, self‐administered questionnaire to assess women's satisfaction with breast reconstruction. Methods Item generation: Three sources for item inventory were utilized: focus groups, expert panel, and literature review. Item reduction: Item impact scores were derived from patients and experts each ranking the importance and frequency of each item. Correlation between patient and expert scores was calculated. The highest impact questions were maintained. Results Four focus groups comprising 20 women generated 515 items, 10 experts developed 171 items, and literature review produced 227 items. These 913 potential items were reduced to 183 by combining redundancy. The 183 items underwent formal reduction by assessing importance and frequency of each item. Thirty‐two of 40 reconstructed women and 19 of 19 experts responded to the mail‐out. Seventy‐seven items of the women's top 100 also made the experts' top 100 list. Intraclass correlation between patients and experts was 0.71 [0.62 0.77], indicating “good” but not “excellent” agreement, reinforcing the importance of patient involvement in questionnaire development. Women rated abdominal donor site issues higher than experts, and experts rated breast softness and symmetry higher than women. Conclusions A 100‐item pilot questionnaire for breast reconstruction satisfaction was developed for psychometric testing. J. Surg. Oncol. 2010; 101:209–216. © 2010 Wiley‐Liss, Inc.