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A patient and family perspective on gene therapy for rare diseases
Author(s) -
Kent Alastair,
Oosterwijk Cor
Publication year - 2007
Publication title -
the journal of gene medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.689
H-Index - 91
eISSN - 1521-2254
pISSN - 1099-498X
DOI - 10.1002/jgm.1097
Subject(s) - perspective (graphical) , genetic enhancement , medicine , family therapy , gene , genetics , biology , computer science , psychiatry , artificial intelligence
The authors describe the view of patients and patient organisations on gene therapy research and gene therapy regulations. In particular, the added value of partnership between scientists and patient organisations, and patient involvement in the gene therapy field, are addressed. Copyright © 2007 John Wiley & Sons, Ltd.