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Perspectives of parents and tutors on a self‐management program for parents/guardians of children with long‐term and life‐limiting conditions: “a life raft we can sail along with”
Author(s) -
Barlow Julie,
Swaby Laura,
Turner Andrew
Publication year - 2008
Publication title -
journal of community psychology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.585
H-Index - 86
eISSN - 1520-6629
pISSN - 0090-4392
DOI - 10.1002/jcop.20258
Subject(s) - limiting , psychology , confidentiality , term (time) , focus group , medical education , value (mathematics) , developmental psychology , social psychology , medicine , sociology , computer science , engineering , computer security , mechanical engineering , physics , quantum mechanics , anthropology , machine learning
The lay‐led, community‐based Supporting Parents Programme (SPP) aims to assist parents caring for children with long‐term or life‐limiting conditions through support and cognitive behavioral techniques. The value of the SPP from the perspectives of parent participants and tutors was examined in focus groups and telephone interviews. Data were analyzed using framework analysis. Parents perceived a commonality of emotions and practical issues, valued meeting similar others, felt less isolated, more positive, motivated, and more calm; some had found the “real me again.” Changes were attributed to techniques learned. Parents were anxious of being cast adrift at the end of SPP. Tutors needed more support and additional training around child protection and confidentiality. © 2008 Wiley Periodicals, Inc.